Support group for caregivers of those with neurodegenerative disease to meet

March 25, 2015

The Neurodegenerative Disease with Behavioral Change Caregiver Support Group will meet from 6 to 8 p.m. on Thursday, March 26, at 30 Hope Drive, Entrance B, room 1019, on the Penn State Hershey campus. Dr. Claire Flaherty and Dr. Helen Stoudt, president and CEO of Lodge Life Services, will lead the group discussion around laying a foundation for legislative action in Pennsylvania to improve services for individuals with frontotemporal disease and their caregivers. Additional questions to be discussed include:

  • How will Pennsylvania enact the Affordable Care Act and what services already exist?
  • What plans are in place to extend existing services and what are the gaps?
  • Do we need caregiver training and salaries, or more home health aides with better training?
  • How can existing facilities offer appropriate support and services?
  • How can legislation protect the financial future of the patient and caregiver?
  • Is a “3rd legal tool” needed between power of attorney and guardianship?

Neurodegenerative conditions with behavioral change affect the entire family system, particularly the spouse or adult child caregiver. Caregiver education and support is crucial to patient and family quality of life, increasing the potential for the patient to receive proper care in the home longer.

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Last Updated March 25, 2015